Indulge & Undermine
Home Message Archive Random Wot's all this then? Theme
this may *look* like an armchair...
»
In response to such divide-and-conquer tactics, Kristian Williams has argued that, “we need to be prepared to support the guilty along with the innocent.” We must also protect the troublemakers, because this is simply not a question of violence or nonviolence, but one of attempts to destroy political movements by violent or nonviolent means. We are opposed to both.

— Counterinsurgency and the Occupy Movement (via ninjabikeslut)

this is very important and everyone who thinks they have politics should take note

Added at 7:13pm27 notes
My Parents are Dead and My Sister is Disabled ↘

neurodiversitysci:

congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

image 

Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

image

Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

image

That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

image

ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

image

May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

image

Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

image

Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

image

YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

image

Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

image

For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

image

But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

image

She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

image

So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

image

Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

Oh wow. Do reblog.  Let’s make things better for people like Edna and her sister.

Apart from the one place where she uses “mind of a three year old,” this is a great example of how to write about caretaking being hard without resenting or dehumanizing the person you’re caring for.  She places the blame where it belongs, on the situation.  Her mother and grandmother died, leaving her to care for Edna while she was barely a grownup herself and going to college, and the services for people with disabilities couldn’t help.  They were incompetent and uncaring.  If I had been in her situation when I was in college I don’t think I would’ve been able to manage.

(Source: )

Added at 6:38pm209,242 notes

vandal0s:

<3.

Look, cocktails!

(Source: an0nymisssss)

vandal0s:

&lt;3.

Look, cocktails!

Men and Women, stages of fear

(Source: vvni)


Added at 10:21am62,298 notes

oodmoriarty:

SIR PATRICK STEWART’S CLASSY ICE BUCKET CHALLENGE x


Added at 1:23am22,970 notes
http://mariecalloway.tumblr.com/post/95571204396/reports-suggest-this-document-is-about-to-be-taken ↘

mariecalloway:

Reports suggest this document is about to be taken down from Pastebin. Pasting it here.

———

We are some cis and trans women and non-binary poets in the Bay Area who are concerned about ongoing issues of misogyny and gender/sexual violence in our communities.

We are writing now with some…

Added at 1:17am55 notes

purposefulthoughts:

Black Panther Newspaper. Jan 1969. 

purposefulthoughts:

Black Panther Newspaper. Jan 1969. 

princemono:

VERIFIED FUNDRAISERS:

aforementioned #operationhelporhush: the starter’s twitterteepsring shop, amazon wishlist, paypal

and Michael Brown’s Memorial Fund

Feed the Students of Ferguson (source: starter’s twitter St. Louis Foodbank Confirmation)

i have been seeing a lot of different links for different places to donate for bail and legal fees, but i haven’t been able to find anything on whether or not the funds have actually been going towards helping out the people of ferguson so

if you know of any more please add and spread them and if in doubt remember to google first

(Source: peechingtonmariejust)


Added at 11:16pm28,023 notes

mohala-sumiko:

this morning, police raided Greater St. Mark school/church in Ferguson, MO (formerly called St. Sebastian’s Parish).

community members had been using it as a safe space and staging area. police claim that the church is violating housing codes by sheltering protesters, even though the pastor has said it isn’t true.

please please please boost this. help these organizers recover the supplies they lost, and share just how fucking far these cops will sink to make the people of Ferguson suffer.


Added at 11:07pm23,844 notes
I’m a cop. If you don’t want to get hurt, don’t challenge me. ↘

littleopticalmachine:

decolonizingmedia:

Unreal.

how even.

Oh my god:

"DON’T ARGUE WITH ME, DON’T CALL ME NAMES, DON’T TELL ME THAT I CAN’T STOP YOU, DON’T SAY I’M A RACIST PIG, DON’T THREATEN THAT YOU’LL SUE ME AND TAKE AWAY MY BADGE. DON’T SCREAM AT ME THAT YOU PAY MY SALARY, AND DON’T EVEN THINK OF AGGRESSIVELY WALKING TOWARDS ME."

Added at 10:00pm35 notes

imnothavinit:

BOOST

just in case there’s anyone in Ferguson who’s following info on tumblr as well

sadly, with the way the police are out, marching, and ready for the curfew (with dogs), there are some people that may need this

"We are prepping for a night if jail support. Call 314 862 2249 if you or friend arrested."


Added at 3:21pm38,614 notes
Bail and Legal Fund for Those Arrested During Ferguson Anti-Police Demonstrations ↘

ninjabikeslut:

neoliberalismkills:

elesheva:

There’s a bail and legal fund for protesters arrested in Ferguson set up here, fyi

reblog this. do it.

this is the new link to give money, because the other link wasn’t meant to handle this much financial traffic :D

source for the skeptics (i understand)

Added at 4:51pm7,817 notes

coketalk:

A sample of tweets on St. Louis tonight


Added at 1:52am74,952 notes

(Source: unite4humanity)

Look, cocktails!

Look, cocktails!